I feel this so deeply as someone taking care of my mom with early onset and knowing that she likely passed the gene on to me. It actually gives me gratitude that my mom didn't have the same sense of doom and got to live her life not knowing what was in store for her. On the bright side there are so many treatments on the horizon and APOE3/APOE4 is far from decisive (and neither is APOE4/4). And you have already given so much positive to this world in your care for your beloved and your wonderful writing, which has been a balm to me as a current caregiver. Another source of hope: writing is a wonderful way to work out your brain and build new synaptic connections that protect against cognitive symptoms. Everyone's journey is different. Sending you all the best in a confusing time. This sucks but you have done so much good!
I feel this so deeply as someone taking care of my mom with early onset and knowing that she likely passed the gene on to me. It actually gives me gratitude that my mom didn't have the same sense of doom and got to live her life not knowing what was in store for her. On the bright side there are so many treatments on the horizon and APOE3/APOE4 is far from decisive (and neither is APOE4/4). And you have already given so much positive to this world in your care for your beloved and your wonderful writing, which has been a balm to me as a current caregiver. Another source of hope: writing is a wonderful way to work out your brain and build new synaptic connections that protect against cognitive symptoms. Everyone's journey is different. Sending you all the best in a confusing time. This sucks but you have done so much good!