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Wendy Carr's avatar

Anna, your sharing your journey is such a gift to all of us out here who are in any way proximate to dementia. I would love reading your story even if my Dad didn’t have dementia, but it goes from an amazing and wonderful story to a lifeline of sorts with that added connection. Thank you. 💙

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BmG's avatar

I’m so glad I found your stack. My brother and I took care of our parents for 3 1/2 years. Our mom was bedridden, in palliative care, then hospice. Our father was beside himself and quickly spiraled into dementia. Our youngest brother died of Covid during this time. The ongoing stress was monumental. We are now two years out from the experience and have, likely due to our ages - over 65, we are becoming the go-to when a spouse is showing symptoms. My closest friend had to put her husband in assisted living and struggles every day emotionally. She knows intellectually it’s the right thing, but wow, the emotional toll.

I’m going to forward your post to her. Thank you for sharing your experience.

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Victoria's avatar

Thanks, Anna. These 'core questions to ask in a Palliative Care Consultation' are tangible and helpful for caregivers and their loved ones. I'll find a place to share your article in Carer Mentor. I'd welcome any other practical tips/thoughts I can share with our community.

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Beth Hutchason's avatar

These questions are wonderful--as was Dr. Farber. I learned a lot from him. I think the most profound moments that I have had with people over the years were due to my silence. Just being present and allowing that quiet and safe space to be.

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Anna Du Pen's avatar

Yes. Don’t hurry to the next thing. Allow space for them to say more. Love that!

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Shelley Durga Karpaty's avatar

I’m grateful to have connected with you, and learn more about your journey, Anna. 💗

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